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Fertility Justice NOW!

Fertility Justice Now! is a campaign to guarantee equitable and non-discriminatory access to fertility care for all residents of  Georgia, regardless of sex, gender identity, sexual orientation, race, disability, marital or relationship status, nationality, or other status, using a multipronged approach that includes awareness raising and proactive legislation.

This campaign, led by SPARK Reproductive Justice NOW and other Georgia-based reproductive health, rights and justice organizations, as well as LGBTQ advocates and social justice organizations, will:

Collaboratively draft a comprehensive fertility care bill that will guarantee fertility care access to the widest  number of individuals in Georgia, garner broad-based community and legislative support, and is introduced  for consideration in the 2025 legislative session.

Engage in community outreach, coalition building, awareness campaigns, and direct engagement with  legislators.

Actively seek input and support from national reproductive rights, health, and justice and fertility advocacy  organizations and experts.

Understanding Fertility Justice

What is Infertility? Infertility is generally defined as the inability to become pregnant after 6-12 months of unprotected sexual intercourse. Often, insurance policies require enrollees to meet this definition before providing them coverage. This is the case even though assisted reproduction is also a critical method of family-formation for single people and same-sex partners. 

What is Assisted Reproduction? Assisted Reproduction refers to fertility care that is intended to help individuals and couples build their families. It includes information, counseling, products, medications, procedures, and services aimed at causing pregnancy through means other than by sexual intercourse. Fertility care includes a broad range of treatments, including intrauterine insemination (IUI), in vitro fertilization (IVF), and fertility preservation (collecting and freezing eggs or sperm), and may involve third parties (gamete donors or people who act as surrogates). 

What are the Barriers to Accessing Fertility Care? Numerous barriers—such as lack of insurance, high out-of-pocket costs, limited information, restrictive laws and policies, stigma, and provider bias—put AR out of reach for many. A single cycle of IVF can cost an average of $20,000, and multiple cycles are often needed to achieve a pregnancy and live birth. Without insurance coverage, this cost is prohibitively expensive for most people. Twenty-one states (and DC) have fertility insurance laws (known as state insurance mandates), but only 15 of them provide coverage for IVF. Nearly all these insurance mandates, though, only apply private insurance and not to state Medicaid programs, and none of them apply to large employers that are self-insured (e.g., pay for insurance directly as opposed to through an insurance company).

There are well-documented disparities in access to fertility care, showing that people of color, low-income people, people with disabilities, and the LGBTQ+ community access fertility treatment at disproportionately low rates in the United States.  For example, while Black women in the United States are nearly twice as likely to experience infertility than non-Hispanic white women, they are less likely than white women to receive care. Below-average rates of fertility care use have also been found among Hispanic and American Indian/Alaska Native non-Hispanic women, while Asian/Pacific Islander and Black non-Hispanic women have reported longer periods of infertility and access fertility care at later ages compared to their non-Hispanic white counterparts.  

As noted above, some insurers require enrollees to meet the definition of infertility before covering their fertility care. Of the 21 jurisdictions with state insurance mandates, only eight are LGBTQ-inclusive. Notably, three states require that the insured use their spouse’s sperm to undergo fertility care – presupposing that the insured is married, female cis-gendered, and in a heterosexual relationship.  


Citation

1 Infertility FAQs, Ctrs. for Disease Control & Prevention, www.cdc.gov/reproductivehealth/infertility/index.htm#:~:text=In%20general%2C%20infertility%20is%20defined,6%20months%20of%20unprotected%20sex (last visited March 26, 2024).

2IVF – In Vitro Fertilization, FertilityIQ, https://www.fertilityiq.com/fertilityiq/ivf-in-vitro-fertilization/costs-of-ivf (last visited April 4, 2024); Fact Sheet: In Vitro Fertilization (IVF) Use Across the United States, Ctrs. for Disease Control & Prevention (Mar. 16, 2024), https://www.hhs.gov/about/news/2024/03/13/fact-sheet-in-vitro-fertilization-ivf-use-across-united-states.html.

3Am. Soc’y for Reprod. Med., Disparities in Access to Effective Treatment for Infertility in the United States: An Ethics Committee Opinion, 116 Fertility & Sterility 54 (2021),https://www.asrm.org/globalassets/_asrm/practice-guidance/ethics-opinions/pdf/disparities_in_access_to_effective_treatment_for_infertility_in_the_us-pdfmembers.pdf ; Angela Kelley et al., Disparities in Accessing Infertility Care in the United States: Results from the National Health and Nutrition Examination Survey, 2013-16, 112 Fertility & Sterility562 (2019), https://doi.org/10.1016/j.fertnstert.2019.04.044; Nat’l Council on Disability, Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and their Children 167-183(2012), https://www.ncd.gov/report/rocking-the-cradle-ensuring-the-rights-of-parents-with-disabilities-and-their-children/

4Anjani Chandra et al., Infertility and Impaired Fecundity in the United States, 1982-2010: Data From the National Survey of Family Growth (2013), NATL HEALTH STAT REPORT (2013), https://www.cdc.gov/nchs/data/nhsr/nhsr067.pdf; Anjani Chandra et al., Infertility Service Use in the United States: Data from the National Survey of Family Growth, 1982-2010, NATL HEALTH STAT REPORT (2014), https://pubmed.ncbi.nlm.nih.gov/24467919/.

5Ada C. Dieke et al., Disparities in Assisted Reproductive Technology Utilization by Race and Ethnicity, United States, 2014: A Commentary, 26 J. of Women’s Health 605 (2017), https://doi.org/10.1089/jwh.2017.6467.

6 CO, DE, DC, IL, ME, MD, NJ, NY.

7 AR, HI, TX.

The Issue

Infertility is a recognized public health concern. In 2023, the World Health Organization (WHO) found that 1 in 6 people globally are affected by infertility.1In the United States, however, well-documented disparities in access to fertility care reveal that people of color, low-income people, people with disabilities, and the LGBTQ+ community access fertility treatment at disproportionately low rates.2 Discriminatory laws and policies, lack of insurance coverage, and deep-seated stigma and misconceptions around infertility all pose significant barriers to accessing fertility care.

Fertility Care in Georgia


Georgia does not mandate insurance coverage for fertility care despite recent data revealing that nearly 2.1 million women ages 20 to 49 experience infertility in the state.3 Nor does Georgia’s Medicaid program cover fertility care,  making the diagnosis and treatment of infertility prohibitively expensive for the nearly 2.2 million Georgians enrolled in the program.4 The average cost of a single round of in vitro fertilization (IVF),5 an assisted reproductive technology used to help people build their families, is $20,000 out of pocket. For those seeking to freeze eggs or sperm, fertility preservation can amount to $15,000, not including storage fees.7 Racial disparities persist in fertility care access. Black women in the United States are nearly twice as likely to experience infertility as non-Hispanic white women, but are 20% less likely to receive care.8 Hispanic and American Indian/Alaska  Native non-Hispanic women show below-average fertility care use. Asian/Pacific Islander and Black non-Hispanic women report longer infertility periods and delayed access to care compared to their non-Hispanic white counterparts.9  Additionally, LGBTQ and gender nonconforming individuals face challenges accessing non-judgmental as insurers and providers operate in and contribute to a health care system that is cisgender and heteronormative.10 For example, insurers often predicate coverage for IVF on a diagnosis of clinical infertility, which is the inability to become pregnant after six months or one year of unprotected sexual intercourse. This requirement discriminates against individuals unable to reproduce via sexual intercourse due to factors such as a lack of a partner or because of someone’s sexual orientation.



Citation

1 World Health Org., Infertility prevalence estimates, 1990–2021 (2023). https://www.who.int/publications/i/item/978920068315

2Am.Soc’y for Reprod. Med., Disparities in Access to Effective Treatment for Infertility in the United States: An Ethics Committee Opinion,  116 Fertility & Sterility54 (2021), https://www.fertstert.org/article/S0015-0282(21)00137-0/fulltext; Angela Kelley et al., Disparities in  Accessing Infertility Care in the United States: Results from the National Health and Nutrition Examination Survey, 2013-16, 112 Fertility  & Sterility 562 (2019), ; National Council on Disability, Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and their  Children at chapter 11 (2012),  https://www.ncd.gov/sites/default/files/Documents/NCD_Parenting_508_0.pdf.https://www.fertstert.org/article/S0015- 0282(19)30423-6/fulltext; Nat’l Council on Disability, Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and their  Children 170-181(2012), https://www.ncd.gov/sites/default/files/Documents/NCD_Parenting_508_0.pdf.

3Number of Infertile by State, RESOLVE(Feb 2020), resolve.org/learn/financial-resources-for-family-building/insurance coverage/getting-insurance-coverage-at-work/number-of-infertile-by-state/.

4July 2023 Medicaid & CHIP Enrollment Data Highlights, Medicaid, https://www.medicaid.gov/medicaid/program information/medicaid-and-chip-enrollment-data/report-highlights/index.html

5In vitro Fertilization (IVF) IVF is an assisted reproductive technology wherein sperm and eggs are combined in a laboratory to create  an embryo that can then be transferred into a uterus, where it may implant in the uterine lining

6 Fertility preservation is the process of cryopreserving eggs, sperm, or reproductive tissue so that a person can use them to have  biological children in the future.

7 Bronwyn Bedrick et al., Factors Associated with Early In Vitro Fertilization Treatment Discontinuation, 112 Fertility & Sterility 105  (2019). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7299162/; Paying for Treatments, All. for Fertility Pres., (2023) https://www.allianceforfertilitypreservation.org/paying-for-treatments/ (last visited Nov. 22, 2023).

8 Anjani Chandra et al., National Center for Health Statistics, Infertility and impaired fecundity in the United States, 1982–2010: Data  from the National Survey of Family Growth (2013), https://www.cdc.gov/nchs/data/nhsr/nhsr067.pdf; Anjani Chandra et al., National  Center for Health Statistics, Infertility service use in the United States: data from the National Survey of Family Growth, 1982-2010  (2014),. Natl Health Stat Report. 2014. .https://pubmed.ncbi.nlm.nih.gov/24467919/.

9 Dieke AC et al., Disparities in Assisted Reproductive Technology Utilization by Race and Ethnicity, United States, 2014: A Commentary,26  Journal of Women‘s Health 605 (2017), https://www.Ncbi.nlm.nih.gov/pmc/articles/PMC5548290/; Jacob P. Christ et al., See one, do  one, teach one: Reimagining reproductive endocrinology and infertility training programs to expand access to care, 3 Fertility &Sterility  114-121 (2022), https://www.fertstertreports.org/article/S2666-3341(21)00117-3/fulltext.

10 K. McDilda et al., Thoughts And Opinions About Fertility Preservation And Family Building From The Transgender Community – An  Interview Based Approach, 120 Fertility & Sterility(2023).